Rare Disease Patient-Advocate to lead Benefit Screening for patients and PSOD This November, a special block screening of “Frozen II”, the sequel of the 2013 blockbuster animated musical-fantasy film, will be held for the benefit of rare disease patients and the Philippine Society for Orphan Disorders (PSOD). Organized by Patient-Advocate Juan Benedicto “Dickoy”
DLSU 247th Naval ROTC Unit holds fundraiser for PSOD MANILA – Last July 1-5, 2019, the 247th Naval Reserve Officers Training Corps Unit of De La Salle University held the Reserve Officers Training Corps Week. The Medics company of the ROTC Unit coordinated with the Philippine Society for Orphan Disorders to assist
Together in Mission: PSOD, DLS-CSB sign MOU on education and rare disease awareness SAN JUAN CITY – Last March 28, 2019, representatives from the Philippine Society for Orphan Disorders (PSOD), De La Salle – College of Saint Benilde (DLS-CSB), rare disease advocates, patients and families gathered for the memorandum of understanding (MOU) signing
PSOD represents PHL, joins Rare Disease Day Policy Event at the United Nations NEW YORK CITY – Last February 22, 2019 (PHL Time), the NGO Committee for Rare Diseases together with its partners AGRENSKA, EURORDIS and Rare Diseases International organized a Policy Event at the United Nations Headquarters held in observance of Rare
National Rare Disease Week unites stakeholders and youth orgs for rare disease awareness With the theme, “Bridging health and social care”, rare disease advocates, patients, families, and youth leaders joined together in the annual observance of National Rare Disease Week (NRDW) 2019 last February 22-28, 2019. This year’s NRDW was launched with the
Join us and be part of National Rare Disease Week 2019 #CareForRarePH The annual observance of National Rare Disease Week (NRDW) and World Rare Disease Day provide an opportunity for policy makers, healthcare professionals, patients, support groups, and the public to unite and support the cause of rare disease patients in the Philippines
10th National Rare Disease Week to focus on “Bridging Health and Social Care” On February 22-28, the Philippines will be celebrating the 10th National Rare Disease Week. Together with the rest of the world, the country will also observe World Rare Disease Day on February 28 with the theme “Bridging Health and Social Care”.
Patients' forum gathers health and advocacy leaders to care for rare The Philippine Society for Orphan Disorders (PSOD) gathered key agency leaders and advocates in a patient-centric event held last month in Manila to discuss ways on how to address, support and protect people with rare diseases. With the theme “Easing the
#JEANerosity: "Sewing the Seeds" from your generosity To be able to cover day-to-day expenses of the family and the cost of care are among the major concerns of many rare disease patient families. Knowing this, the Philippine Society for Orphan Disorders has searched and eventually developed a livelihood opportunity for patient families. This October 2018,
PSOD joins 40th Nat'l Disability Prevention and Rehabilitation Week The Philippine Society for Orphan Disorders (PSOD) joined the nation in observance of the 40th National Disability Prevention and Rehabilitation Week (NDRPW). This year’s theme of the NDRPW focuses on skills development and livelihood of persons with disability (PWDs) (“Kakayahan at Kasanayan para
