Together in Mission: PSOD, DLS-CSB sign MOU on education and rare disease awareness SAN JUAN CITY – Last March 28, 2019, representatives from the Philippine Society for Orphan Disorders (PSOD), De La Salle – College of Saint Benilde (DLS-CSB), rare disease advocates, patients and families gathered for the memorandum of understanding (MOU) signing

  PSOD represents PHL, joins Rare Disease Day Policy Event at the United Nations NEW YORK CITY – Last February 22, 2019 (PHL Time), the NGO Committee for Rare Diseases together with its partners AGRENSKA, EURORDIS and Rare Diseases International organized a Policy Event at the United Nations Headquarters held in observance of Rare

  National Rare Disease Week unites stakeholders and youth orgs for rare disease awareness With the theme, “Bridging health and social care”, rare disease advocates, patients, families, and youth leaders joined together in the annual observance of National Rare Disease Week (NRDW) 2019 last February 22-28, 2019. This year’s NRDW was launched with the