Rare Disease Week 2020 to highlight what it means to be “rare”- Many, Strong, and Proud

Rare Disease Week 2020 to highlight what it means to be "rare" - Many, Strong, and Proud   Rare diseases refer to life-threatening or chronically debilitating diseases which are of such low prevalence that require special combined efforts are needed to address them. In the Philippines, the last week of February is dedicated to

Together in Mission: PSOD, DLS-CSB sign MOU on education and rare disease awareness

  Together in Mission: PSOD, DLS-CSB sign MOU on education and rare disease awareness SAN JUAN CITY – Last March 28, 2019, representatives from the Philippine Society for Orphan Disorders (PSOD), De La Salle – College of Saint Benilde (DLS-CSB), rare disease advocates, patients and families gathered for the memorandum of understanding (MOU) signing

PSOD represents PHL, joins Rare Disease Day Policy Event at the United Nations

  PSOD represents PHL, joins Rare Disease Day Policy Event at the United Nations NEW YORK CITY – Last February 22, 2019 (PHL Time), the NGO Committee for Rare Diseases together with its partners AGRENSKA, EURORDIS and Rare Diseases International organized a Policy Event at the United Nations Headquarters held in observance of Rare

Nat’l Rare Disease Week unites stakeholders and youth orgs for rare disease awareness

  National Rare Disease Week unites stakeholders and youth orgs for rare disease awareness With the theme, “Bridging health and social care”, rare disease advocates, patients, families, and youth leaders joined together in the annual observance of National Rare Disease Week (NRDW) 2019 last February 22-28, 2019. This year’s NRDW was launched with the

10th National Rare Disease Week to focus on “Bridging Health and Social Care”

  10th National Rare Disease Week to focus on “Bridging Health and Social Care” On February 22-28, the Philippines will be celebrating the 10th National Rare Disease Week. Together with the rest of the world, the country will also observe World Rare Disease Day on February 28 with the theme “Bridging Health and Social Care”.

PhilHealth Conducts PAPO Speakers’ Bureau Training

      PhilHealth conducts PAPO Speakers' Bureau Training PASIG CITY – The Philippine Health Insurance Corporation (PhilHealth) recently conducted a two-day training for members of the Speakers’ Bureau of the Philippine Alliance of Patient Organizations (PAPO) to help spread updated information about the National Health Insurance Program (NHIP) to stakeholders from various groups. Representatives

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