The Parco Boys: Angie’s Angels

The Parco Boys with Nanay Angie

Twins John Paul (16) and Peter John (16) and younger brother Vicente (15) Parco are afflicted with Hunter Syndrome (Mucopolysaccharidosis Type II), a rare disease which affects about 1 in every 40,000 individuals worldwide. Hunter Syndrome, is a rare inborn error of metabolism characterized by deficiency of an enzyme which breaks down specific long sugar molecules (GAGS) that are found in many parts of the body such as bone, joints, heart valves, etc. Accumulation of GAGs can eventually lead to dysfunction of these organs.

The twins are in 3rd year HS while Vicente is in his 2nd year. Vicente dreams of being a cop while his Kuya John Paul would like to become a cartoonist and Kuya Peter John would like to become an IT specialist someday.

Nanay Angie on her boys: Napakalambing ng mga ‘yan sa akin. Masaya kami kahit nakatambay lang sa bahay kasi enjoy kami lagging magkakasama.

Julia

Julia has Rett Syndrome which afflicts 1 in about 10,000-23,000 individuals worldwide. Rett Syndrome is a unique developmental disorder that is first recognized in infancy and seen almost always in girls, but can be rarely seen in boys. It has been most often misdiagnosed as autism, cerebral palsy, or non-specific developmental delay.

Julia is confined to a wheelchair in has a traech for her feeding. Though she has a developmental disorder and cannot communicate, she responds to touch, music and color. Her Mommy Pam says she likes watching TV and has a crush on ‘Papa’ Piolo!

Princess Paula

Princess has Moebius Syndrome, a rare congenital neurological disorder which is characterized by facial paralysis—leaving them unable to close their eyes or move them from side to side or even form facial expressions to show their emotions. Despite this, Mommy Maridel says hey little girl is as active as any other little girl—and she loves to sing and dance and enjoys going to school.

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