Like Most of Us, Kids with Rare Illnesses Are Rarin’ To Live Life

An obstacle course, art puzzles, horseback riding, and swimming filled a hectic, “worry-free” day of fun in Tagaytay over the weekend for 10 children with rare disorders that upset their growth but not their fighting spirit.

Children with rare disorders enjoy horseback riding on a worry-free Sunday in Tagaytay together with the Photography With a Difference (PWD) volunteers, Tagaytay Highlands, SM Cares, Canon and the Philippine Society for Orphan Disorders. Earl Victor L. Rosero
With the zeal the kids showed, they proved that given the chance—and sometimes with very little prodding—children with rare disorders seize the moments to experience whatever life has to offer.

Cyrel Naul, a grade four student, has Hunter Syndrome, which afflicts about one in every 100,000 males and renders the body unable to break down sugar molecules needed for vital organs and tissues to function as they should.

His mother, Cristy, told GMA News Online, Cyrel was so excited about the Tagaytay excursion that he hardly had any sleep the night before.

Please read the full news story on the GMA News website.

* This article is from the GMA News web site. It’s written by Earl Victor L. Rosero and published on October 23, 2012 3:36pm.

This Post Has One Comment

  1. Paolo Rodriguez

    Do you have information here where donations can be sent to?

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