2015 marks eight consecutive, successful years of Rare Disease Day. Continuing the momentum, Rare Disease Day 2015 puts the focus on the daily lives of patients, families and caregivers who are Living with a Rare Disease.
Rare Disease Day was first launched by European Organisation for Rare Diseases (EURORDIS) and its Council of National Alliances in 2008 where more than 1000 events have taken place throughout the world reaching hundreds of thousands of people and resulting in a great deal of media coverage. The political momentum resulting from the Day has also served for advocacy purposes. It has notably contributed to the advancement of national plans and policies for rare diseases in a number of countries.
Even though the campaign started as a European event, it has progressively become a world event, with over 80 countries participating in 2014.
For more info, visit www.rarediseaseday.org.