Beating the Odds The following is the transcript of the speech given by Pompe disease patient and Rare disease advocate, Mr. Juan "Dickoy" Magdaraog during the first Philippine Rare Disease Symposium held last February 22, 2017. Good afternoon! My name is Juan and I've been suffering from Pompe's disease
DOH kicks off Nat'l Rare Disease Week through its first ever symposium on rare diseases In line with the passage of the Rare Disease Act of the Philippines (RA 10747), the Department of Health (DOH) in partnership with the University of the Philippines National Institutes of Health (UP NHI)
PSOD joins Rare Disease Asia Conference 2016 KUALA LUMPUR - The Philippine Society for Orphan Disorders, Inc (PSOD) led the Philippine delegation to the 2nd Rare Disease Asia Conference (RDAC). The three-day conference was held from November 17 to 19 in Kuala Lumpur, Malaysia. The PHL group was headed by UP Manila
Rare Disease Advocacy takes center stage at 2016 NBS confab PASAY CITY - Last October 24-25, the Newborn Screening Society of the Philippines (NSSP) and the Newborn Screening Reference Center (NSRC-NIH, UPM) gathered 1800 professionals, practitioners, guests, and newborn screening advocates for the 14th National Newborn Screening (NBS) Convention at the Philippine
