Share Your Colours: NRDW 2022 to highlight rare disease patients and the role of the public in awareness promotion

Share Your Colours: NRDW 2022 to highlight rare disease patients and the role of the public in awareness promotion Rare ...

NRDW goes digital, to mark 12th year on top of COVID19 pandemic

NRDW goes digital, to mark 12th year on top of COVID19 pandemic In the Philippines, National Rare Disease Week which ...

RDI Statement on COVID-19 Response and Recovery

Rare Disease International Statement on COVID19 Response and Recovery What this global pandemic has shown is that “the virus does ...

Dear Moms, It’s OK to stare: Here’s how you can help make this an inclusive world

Dear Moms, It’s OK to stare: Here’s how you can help make this an inclusive world A few years ago, ...

Meet Krizelle: A #PinoyScientist living with a rare disease

Meet Krizelle: A #PinoyScientist living with a rare disease Portrait artwork (oil in canvass) of Krizelle working in the lab ...

Rare Disease Spotlight: Get to know the key provisions of Republic Act 10747 and its IRR

Rare Disease Spotlight: Get to know the key provisions of Republic Act 10747 and its IRR The National Rare Disease ...

Rare Disease Week 2020 to highlight what it means to be “rare”- Many, Strong, and Proud

Rare Disease Week 2020 to highlight what it means to be “rare” – Many, Strong, and Proud Rare diseases refer ...

Family is Forever: Eximius BPO, PSOD bring joy to patient families for Christmas

Family is Forever: Eximius BPO, PSOD bring joy to patient families for Christmas PASIG CITY – Last December 7, 2019, ...

Patient-advocate spearheads Frozen II benefit screening for Rare patients, PSOD

Patient-Advocate spearheads Frozen II Benefit Screening for Rare patients, PSOD PASIG CITY – With two cinemas fully booked, the benefit ...

Rare Disease Patient-Advocate to lead Benefit Screening for patients and PSOD

Rare Disease Patient-Advocate to lead Benefit Screening for patients and PSOD This November, a special block screening of “Frozen II”, ...

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